Practical Guidance for Families

Hospital Discharge Fact Sheet

Leaving hospital with the right questions, information, and support

Adult daughter comforting elderly mother at home

Coming home from hospital can be a relief, but it can also bring a new set of questions. This fact sheet helps families understand what to check, what support may be available and where to go for further help.

Before leaving hospital

Do not be afraid to ask questions. You should understand what is happening after discharge, not simply when the person is leaving.

Things to check before you leave.

  • What was the reason for the hospital admission?
  • Is the condition stable enough for the person to leave hospital safely?
  • Has anything changed since admission that will affect daily life at home?
  • Has mobility changed, and can the person safely get in and out of bed and chairs?
  • Can they manage stairs, washing, dressing, and using the toilet?
  • Can they make food and drinks independently, or will they need help?
  • Is there increased confusion, memory difficulty, or a change in behaviour?
  • Has a discharge assessment found any need for extra care?
  • What care or support is needed at home, when will it start, and who is arranging?
  • Who is the home-care provider that has been informed that the person is returning home on xx date?
  • Is equipment needed, and will it be in place when the person arrives home?
  • Have medicines changed, and do you have the medicines needed at once after discharge?
  • Do you know what each medicine is for and whether any have been stopped by the Dr?
  • Have medication changes been communicated to the GP?
  • Are follow-up appointments needed?
  • Who should we contact if the person becomes unwell or recovery does not go to plan?
  • Do you have the discharge information or care plan where applicable?
  • Is transport home arranged and is the home warm, accessible, and stocked with essentials?
  • Does someone need to stay with or regularly check on the person during the first few days?
Useful to know. NHS guidance says discharge information should explain treatment and support, who manages providing it, how support will be reviewed and who to contact if something goes wrong. Appropriate medication should also be available when the person leaves hospital.

What happens to benefits while you are in hospital?

A hospital admission can affect some benefits, particularly disability-related benefits. Do not assume the Department for Work and Pensions (DWP) will automatically know about the hospital stay.

GOV.UK recommends that the organisation paying the benefit should be told if someone goes into hospital or a rehabilitation centre for one night or longer. More than one organisation may need to be notified if several benefits are being received.

They may ask for:

  • The date the person entered hospital.
  • The date they left hospital.
  • The hospital and ward.
  • Details of any transfers between hospitals.
  • Other hospital stays within the previous 28 days.
  • What address the person was discharged to and by who.

Attendance Allowance, PIP and DLA

Attendance Allowance, Personal Independence Payment and Disability Living Allowance can be affected by longer NHS-funded hospital stays. The 28-day point is particularly important, and separate hospital stays close together can sometimes be linked when calculating the period. Check the person's individual circumstances with the DWP rather than stopping a benefit yourself.

Pension Credit

Pension Credit does not necessarily stop simply because someone is in hospital. However, added amounts within Pension Credit can be affected if a disability benefit changes or stops.

State Pension

A hospital stay does not normally stop someone receiving their State Pension.

Carer's benefits

If someone receives a benefit because they care for the person who has gone into hospital, their entitlement may also be affected depending on the length of the hospital stay and the benefits being received.

A simple rule to remember:
  • Hospital admission = check benefits.
  • Hospital discharge = check again.
  • Moving into respite or residential care = check again.

Benefit rules depend on individual circumstances; the benefit being claimed and sometimes who is funding the care.

What if you think someone is being discharged too soon?

Two people holding hands over a table with coffee cups

A person does not necessarily need to have fully recovered before leaving an acute hospital. Current discharge arrangements may involve recovery and assessment taking place at home or in another community setting once acute hospital treatment is no longer needed.

However, discharge should still be planned around the person's needs and right support. If you are worried, be specific about why.

Be specific about the risk. For example, "Dad lives alone and cannot currently get himself safely to the toilet" gives the team clearer information than "I don't think Dad is ready."

Ask to speak to the nurse in charge, the clinical team, the discharge coordinator/team, occupational therapy or physiotherapy where relevant, and the hospital social worker where social-care needs are involved.

Explain what the person could manage before admission, what they can manage now and what help will realistically be available at home. Do not say that family members can provide care unless they genuinely can.

Questions to ask:

  • What assessment has been made of their ability to manage safely?
  • What has changed since admission?
  • What help will be provided when they leave and when will it start?
  • What happens during the first night?
  • What happens if the care package does not work?
  • Who do we contact for care arranged on homecoming?
  • Has cognition or confusion been considered?
  • Has mobility been assessed?
  • Have carers' circumstances been considered?
  • Would rehabilitation or enablement be right?
  • Would a temporary recovery or assessment placement be safer than going straight home?

If you are unhappy about how a discharge has been managed, raise the issue with the staff arranging the discharge. In England, the hospital's Patient Advice and Liaison Service (PALS) can also provide support.

Home from hospital — help that may be available

Some people need little support after leaving hospital. Others need help to rebuild confidence and independence.

Reablement or intermediate care

This is short-term support designed to help someone recover and become as independent as possible. Depending on need, it may include:

  • Help with washing and dressing.
  • Practising preparing meals.
  • Mobility and walking.
  • Managing stairs.
  • Physiotherapy.
  • Occupational therapy.
  • Nursing support.
  • Equipment or adaptations.
  • Rebuilding confidence with everyday tasks.

In England, eligible intermediate care is provided free for the period it is needed, commonly for a maximum of six weeks or less. Not everyone will qualify and arrangements vary locally.

Community health support

Depending on needs, support might involve:

  • Community nurses.
  • Physiotherapists.
  • Occupational therapists.
  • Or other NHS community teams.

Adult Social Care

If longer-term care is needed, the local authority can arrange a care needs assessment. This may lead to home care, help with personal care, day services, equipment and adaptations, supported living or residential care. A separate financial assessment may help to decide whether the local authority contributes towards longer-term social-care costs.

Support for unpaid carers

A family member or friend who regularly provides unpaid care can ask the local authority for a Carer's Assessment to look at their own support needs.

Moving into respite or temporary care

Going directly home is not always the right next step. A few people may benefit from a temporary stay in a community hospital, rehabilitation setting or care home while they recover or while longer-term needs are assessed.

This is different from making an immediate decision that someone should move permanently into a care home. A temporary stay can provide time to understand recovery, mobility, personal-care needs, cognition, medication needs and whether returning home is realistic.

Before agreeing to respite or temporary care, ask:

  • Is this placement temporary?
  • What is the purpose of the placement?
  • Who arranged it?
  • Who is funding it?
  • How long is the placement expected to last?
  • What rehabilitation or support will be provided?
  • When will the person's needs be reviewed and who will carry out that review?
  • Is returning home still the intended outcome?
  • What happens if longer-term care becomes necessary?
  • Will there be any charges?
  • Could the placement affect benefits?
  • Who should be contacted with questions or concerns?
Funding matters. Benefits can be affected differently depending on whether a care home stay is temporary or permanent and whether it is NHS-funded, local-authority funded or self-funded. Check the individual's circumstances when the placement or funding arrangement changes.

Keep a hospital discharge folder

Hospital discharge can involve several organisations very quickly. Keep together:

  • Discharge letter
  • Current medication list
  • Care plan
  • Hospital and GP contact details
  • Follow-up appointments
  • Care agency details
  • Social worker or discharge coordinator details
  • Equipment information
  • Benefit correspondence
  • Care-home or respite information
  • Important telephone numbers
  • Notes of conversations and decisions
Practical tip. Write down who you spoke to, when you spoke to them and what was agreed. It can make a complicated situation much easier to follow.

Where Golden Transitions can support

Two women laughing together over coffee

Hospital discharge can leave families trying to understand health care, social care, benefits, care providers and family responsibilities — often at the same time. Golden Transitions helps you make sense of the journey and work out what needs to happen next.

Understand what is happening

We help translate unfamiliar terminology and processes into plain English so you know what questions to ask and what the next steps may be.

Prepare for discharge discussions

We can help you create a practical list of questions and concerns to take into conversations with hospital and discharge teams.

Get organised

We help bring together information about medication, appointments, care requirements, family contacts, professionals involved, outstanding actions and important documents.

Explore the options

If home care, reablement, respite, residential care or other support is being discussed, we can help you understand the different options and show the questions you may want to ask.

Research and compare services

We can help you research local services and different care options and create a comparison report, so decisions feel more manageable.

Coordinate the next steps

When several organisations are involved, we can help you keep track of who is doing what, what still needs to happen and what questions remain unanswered.

Signpost you to the right professional

Golden Transitions does not replace doctors, social workers, solicitors, financial advisers or other regulated professionals. Where specialist advice is needed, we can help find the type of professional or organisation you may need and signpost you towards right sources of support.

Essential information. This fact sheet provides general information and practical guidance. It is not medical, legal, financial or benefits advice. Individual circumstances differ, and NHS and social-care arrangements can vary between areas and between the nations of the UK. The hospital-discharge information in this guide primarily reflects NHS England guidance. Always check individual benefit entitlement with the relevant government department or an independent, qualified benefits adviser.