Practical Guidance for Families
Leaving hospital with the right questions, information, and support
Coming home from hospital can be a relief, but it can also bring a new set of questions. This fact sheet helps families understand what to check, what support may be available and where to go for further help.
Do not be afraid to ask questions. You should understand what is happening after discharge, not simply when the person is leaving.
Things to check before you leave.
A hospital admission can affect some benefits, particularly disability-related benefits. Do not assume the Department for Work and Pensions (DWP) will automatically know about the hospital stay.
GOV.UK recommends that the organisation paying the benefit should be told if someone goes into hospital or a rehabilitation centre for one night or longer. More than one organisation may need to be notified if several benefits are being received.
They may ask for:
Attendance Allowance, Personal Independence Payment and Disability Living Allowance can be affected by longer NHS-funded hospital stays. The 28-day point is particularly important, and separate hospital stays close together can sometimes be linked when calculating the period. Check the person's individual circumstances with the DWP rather than stopping a benefit yourself.
Pension Credit does not necessarily stop simply because someone is in hospital. However, added amounts within Pension Credit can be affected if a disability benefit changes or stops.
A hospital stay does not normally stop someone receiving their State Pension.
If someone receives a benefit because they care for the person who has gone into hospital, their entitlement may also be affected depending on the length of the hospital stay and the benefits being received.
Benefit rules depend on individual circumstances; the benefit being claimed and sometimes who is funding the care.
A person does not necessarily need to have fully recovered before leaving an acute hospital. Current discharge arrangements may involve recovery and assessment taking place at home or in another community setting once acute hospital treatment is no longer needed.
However, discharge should still be planned around the person's needs and right support. If you are worried, be specific about why.
Ask to speak to the nurse in charge, the clinical team, the discharge coordinator/team, occupational therapy or physiotherapy where relevant, and the hospital social worker where social-care needs are involved.
Explain what the person could manage before admission, what they can manage now and what help will realistically be available at home. Do not say that family members can provide care unless they genuinely can.
Questions to ask:
If you are unhappy about how a discharge has been managed, raise the issue with the staff arranging the discharge. In England, the hospital's Patient Advice and Liaison Service (PALS) can also provide support.
Some people need little support after leaving hospital. Others need help to rebuild confidence and independence.
This is short-term support designed to help someone recover and become as independent as possible. Depending on need, it may include:
In England, eligible intermediate care is provided free for the period it is needed, commonly for a maximum of six weeks or less. Not everyone will qualify and arrangements vary locally.
Depending on needs, support might involve:
If longer-term care is needed, the local authority can arrange a care needs assessment. This may lead to home care, help with personal care, day services, equipment and adaptations, supported living or residential care. A separate financial assessment may help to decide whether the local authority contributes towards longer-term social-care costs.
A family member or friend who regularly provides unpaid care can ask the local authority for a Carer's Assessment to look at their own support needs.
Going directly home is not always the right next step. A few people may benefit from a temporary stay in a community hospital, rehabilitation setting or care home while they recover or while longer-term needs are assessed.
This is different from making an immediate decision that someone should move permanently into a care home. A temporary stay can provide time to understand recovery, mobility, personal-care needs, cognition, medication needs and whether returning home is realistic.
Before agreeing to respite or temporary care, ask:
Hospital discharge can involve several organisations very quickly. Keep together:
Hospital discharge can leave families trying to understand health care, social care, benefits, care providers and family responsibilities — often at the same time. Golden Transitions helps you make sense of the journey and work out what needs to happen next.
Understand what is happening
We help translate unfamiliar terminology and processes into plain English so you know what questions to ask and what the next steps may be.
Prepare for discharge discussions
We can help you create a practical list of questions and concerns to take into conversations with hospital and discharge teams.
Get organised
We help bring together information about medication, appointments, care requirements, family contacts, professionals involved, outstanding actions and important documents.
Explore the options
If home care, reablement, respite, residential care or other support is being discussed, we can help you understand the different options and show the questions you may want to ask.
Research and compare services
We can help you research local services and different care options and create a comparison report, so decisions feel more manageable.
Coordinate the next steps
When several organisations are involved, we can help you keep track of who is doing what, what still needs to happen and what questions remain unanswered.
Signpost you to the right professional
Golden Transitions does not replace doctors, social workers, solicitors, financial advisers or other regulated professionals. Where specialist advice is needed, we can help find the type of professional or organisation you may need and signpost you towards right sources of support.